Consider your values:

  • Play Go Wish Game online to consider what is important to you
  • Watch a few TED talks on Death and be inspired to talk about your wishes.

 

 

 

Fact 1: Less than 5% of people have a plan for their End of Life

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Fact 2: 45% of us will die without a Will

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Fact 3: Of those who know they are dying, only 25% will have spoken to their families about their wishes

Ask yourself:

  • Who would be willing to speak on my behalf?
  • Can this person separate their feelings from mine?
  • Does this person understand me/my wishes?
  • Can they manage the responsibility?
  • Are they available?
  • Can they manage conflict?
  • Are they comfortable talking about dying, illness and death?
  • How is their death literacy; in particular, their understanding of the health system?

 

The NSW Department of Health has developed the Planning Ahead Website. 

This website has information and templates for:

  1. Advance Care Planning
  2. Power of Attorney/Enduring Power of Attorney
  3. Enduring Guardian
  4. Wills

Other States:

Western Australia

  1. Enduring Power of Attorney
  2. Enduring Power of Guardianship (EPG)
  3. Advance Health Directives

 

Some definitions: 

WillA legal document outlining your financial wishes.

Advance Care Plan / DirectiveA way to think about, communicate and document your wishes for your future healthcare.

Enduring Power of Attorney / Power of AttorneyA legal document appointing a person/trustee to manage your financial and legal affairs while you are alive. Enduring means it is still legal if you lose capacity.

Enduring GuardianA person legally appointed by you (or the Civil and Administrative Tribunal) as the person responsible to consent or decline treatment for you when you are unable to speak for yourself. Not relevant to business, property or financial decisions.

Emotional WillFocuses on legacy items and memories.

Authorised Adult Palliative Care Plan: Ambulance Service/GPPalliative care patients and their families may choose to complete a NSW Ambulance Authorised Adult Palliative Care Plan in consultation with their GP. In the event of an emergency Triple Zero (000) call out by the patient, the plan authorises paramedics to deliver individually tailored treatment specified by the GP. This may include administration of medications and other actions to relieve and manage symptoms in the home.

Funeral Plans and pre-planning optionsCHOICE has complied an excellent review of the options.


Fact 4: 70% of deaths are expected

Source: SMH

Source: SMH

Most of us die of chronic and expect illnesses. We have time to plan!

 

Fact 5: Doctors Die Differently

- with less intervention, at home, and with less invasive intervention at end of life. 

Read more here.

 

Fact 6:  Early referral to palliative care means living longer with better quality of life

Dr. Temel and some of her coauthors were involved in a groundbreaking study of palliative care published 4 years ago (N Engl J Med. 2010;363;733-742). They found that if they brought in palliative care at cancer diagnosis it led to a significant improvement in survival in patients with metastatic nonsmall-cell lung cancer. The study was called 'paradigm-shifting' and 'precedent-setting' by experts in palliative medicine.

Some great articles on Palliative and end of life care:

 

Fact 7: Almost half of us would like to know more about DIY funerals

In NSW you can be your own funeral director or you can hire a funeral director to do specific tasks such as body transportation or burial/cremation.

Here is some helpful information:

 

 

Western Australia

In WA you need a permit to arrange your own funeral. 

Here is an example from Perth and another from Port Headland

 

 

Fact 8: 60% of Australians choose cremation. Have you considered the alternatives?

 

Fact 9: We don’t grieve in stages, and only about 10% of us need professional support after a death

Fact 10: 60% think we don't talk about death enough

There is an international movement promoting and calling for greater awareness about end of life and planning for death, dying and bereavement. As someone who has attended the '10 Things' workshop, you have knowledge and information you can share in your workplace, community and family.

There are many things you can do to connect with this community of change makers. 

Firstly Dying To Know Day is August 8th - founded by The GroundSwell Project and inspired by the book Dying to Know, the day encourages everyone to take action and help build death literacy in our communities. Get involved and run an event in your community. Join the mail list here.

Click HERE for our BIG list of death literacy builders. We held our first Death Literacy conference in 2014, so watch this space. 

Purchase the Dying to know book HERE

 

 

TALKING ABOUT DEATH & CONVERSATION PROJECTS

These projects promote the importance of promoting conversations about death and dying as part of life: